Developing a quality-of-life measure for autistic children and young people in schools
DOI::
https://doi.org/10.22024/UniKent/03/ajpp.1192چکیده
Aim: To develop a quality-of-life measure to be used by both school staff and autistic children and young people (CYP) in schools, in which public and community involvement (PCIE) is at the heart of the research. Method: A prevalence questionnaire survey will be conducted with 20 primary and secondary schools across Kent, Surrey, and Sussex (KSS). 10 semi-structured interviews will be conducted with autistic CYP. This will inform development of a quality-of-life measure for autistic CYP. Results: Work so far has included PCIE in the early stages of the project, in which young people, school staff and collaborators have contributed to the study set up and designing study materials. Conclusion: With PCIE included in the planning of the project, the research team is confident that this will be useful further along in the project with dissemination and validating and implementing a quality-of-life measure for autistic CYP in schools.
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